
Dansk forening for Williams syndrom (facebook.com/williamssyndromdk), the Danish Association for Williams Syndrome, was established in 1991.
“We have approximately 100 members affected by Williams syndrome and their families as supporting members. The association is nationwide.”
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Mette Grentoft
Mette is the President of the Danish association for Williams Syndrome and has the privilege to be the Danish delegate and Chair of FEWS. Mette is also a board member of the Danish national Alliance for rare diseases (Rare Diseases Denmark).
“I am a nurse anesthetist of education and my personal experience is raising a girl, born in 1999 affected by Williams syndrome.”
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