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FEWS - European Federation of Williams Syndrome organisations

Formed in 1998, we are a union of representatives of Williams Syndrome people from various countries and states of Europe, who share a common goal. We are determined to improve the lives of all those who suffer from this rare syndrome and we aim to do this in a few basic ways: - to raise international awareness - to build and reinforce our links within the European Community - to promote scientific, educational and social research - to provide learning opportunities - to provide holiday opportunities - to raise money for all of these
FEWS - European Federation of Williams Syndrome organisations
FEWS - European Federation of Williams Syndrome organisationsSaturday, December 30th, 2017 at 11:59pm
The year 2017 was another succesful year for our federation. Our new board and members worked hard and managed to prepare the photocontest Friendship and Williams Syndrome, discussed the issue of medical registry, held a meeting in Prague and welcomed a Serbian association to our European federation. The Italian association prepared a wonderful camp for our young people with WS and Spanish association held an internation conference in Madrid. Other associations worked hard too, all of them prepared local meetings and other events. We hope the year 2018 will be even more succesful and therefore we wrote priorities for FEWS in 2018. You can also download them here: http://eurowilliams.org/FEWS_Priorities_2018.pdf
We wish you a wonderful New Year and we are looking forward to share more with you!
FEWS - European Federation of Williams Syndrome organisations
FEWS - European Federation of Williams Syndrome organisations added 2 new photos.Sunday, November 12th, 2017 at 3:37am
The International Meeting on Williams-Beuren Syndrome "Building our Future" was successfully finished in Madrid. Many thanks for the enthusiastic organizers and volunteers!
FEWS - European Federation of Williams Syndrome organisations
FEWS - European Federation of Williams Syndrome organisationsThursday, November 9th, 2017 at 7:47pm
The International Meeting on Williams-Beuren Syndrome "Building our Future", is starting today, organized by the Williams Syndrome Association of Spain. More information on the home page of the event: http://jiasw.sindromewilliams.org/conferences/?lang=en

Photocontest 2017: Friendship and Williams Syndrome

The second Williams Syndrome photocontest took part in March and April 2017. This year the countries didn´t collect entries but everybody was able to send via email or facebook page https://www.facebook.com/FEWSPhotoContest/ where you can see all the entries.

Here are our winners:

1st place - Soraya Carmona /Spain/

2nd place - Mike Diez /Spain/

3rd place - Siska Van der Donckt /Netherlands/

Congratulations to winners and thanks to all participants.


Photocontest 2016: Music and Williams Syndrome

In January and February 2016 the first Williams Syndrome Photocontest was held. This year´s topic was Williams Syndrome and Music and each country within FEWS collected photographs of non-professional artists. Each country also selected three winners in two categories - category below 14 years and above 14 years. Later FEWS selected the overall winners of the competition and here are the winning photos:

Third place in the category above 14 years - Susan (Denmark)

Third place in the category above 14 years - Susan (Denmark)

Second place in the category above 14 years - Meta Dankfort-Nevel (Belgium)

Second place in the category above 14 years - Meta Dankfort-Nevel (Belgium)

The winner in the category above 14 years - Rosa Aznar Gomez (Spain)

The winner in the category above 14 years - Rosa Aznar Gomez (Spain)

The winner in the category up to 14 years - Alexia Colmorgen (Germany, 12 years old)

The winner in the category up to 14 years - Alexia Colmorgen (Germany, 12 years old)

You can check the complete album on our facebook page
https://www.facebook.com/media/set/?set=a.1033726693357697.1073741829.781333178597051&type=3


International Williams Syndrome Conference in Rome

Next October 17th 2015, the Italian Williams Syndrome association AISW Onlus organises an International Conference 'Harmonize Williams Syndrome in Europe' in the Aula Magna of the Pontificial Lateranese University in Rome. You can find the program, speakers, venue, accomodation and registration information on www.hwsie.aisw.it.


European Conference on Williams Syndrome in Budapest

The European Conference on Williams Syndrome last November exceeded the expectations with almost 100 participants from 17 different countries. The majority of the participants came from the eastern European countries. They included mainly professionals involved with Williams people and were complemented by parents and representatives of Williams syndrome associations. 13 expert international speakers presented different topics going from genetics and medical to educational and social topics. You can find more details here.

 


Williams Syndrome and Eurovision song contest

A finish group Pertti Kurikan Nimipäivät who consists of people with intellectual disabilities including Down and Williams Syndrome won against other eight contestants and will represent Finland for Eurovision song contest taking part in May 2015 in Vienna. Their songs deal for example with daily problems of people with disabilities, discrimination or politics. Besides this competition you can meet this group in film called Punk Syndrome.

http://www.pri.org/stories/2015-03-03/finlands-eurovision-finalists-sing-about-discrimination-against-mentally-disabled