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FEWS - European Federation of Williams Syndrome organisations

Formed in 1998, we are a union of representatives of Williams Syndrome people from various countries and states of Europe, who share a common goal. We are determined to improve the lives of all those who suffer from this rare syndrome and we aim to do this in a few basic ways: - to raise international awareness - to build and reinforce our links within the European Community - to promote scientific, educational and social research - to provide learning opportunities - to provide holiday opportunities - to raise money for all of these
FEWS - European Federation of Williams Syndrome organisations
FEWS - European Federation of Williams Syndrome organisationsFriday, December 14th, 2018 at 9:49pm
We are proud to announce that one of our delegates - Fionnuala Tynan wrote a book WiShes - Williams Syndrome: Holistic Educational Strategies
You can read more about the book here http://www.mic.ul.ie/latestnews/Pages/WiSHES.aspx
FEWS - European Federation of Williams Syndrome organisations
FEWS - European Federation of Williams Syndrome organisationsTuesday, December 11th, 2018 at 11:27pm
The Council of European Rare Disease Federations are meeting in Paris this week! Lots on the agenda to discuss about current and future European #raredisease advocacy on #RareDiseaseDay, #HTA, #ERN, #Research and more.
FEWS - European Federation of Williams Syndrome organisations
FEWS - European Federation of Williams Syndrome organisationsSunday, October 21st, 2018 at 7:10am
Our annual meeting in Oslo came to the end. Thanks to the Norwegian association for organizing such a wonderful weekend and all delegates for their work!
You can spread awareness by sharing a picture with W made with your hands 😉

Photocontest 2017: Friendship and Williams Syndrome

The second Williams Syndrome photocontest took part in March and April 2017. This year the countries didn´t collect entries but everybody was able to send via email or facebook page https://www.facebook.com/FEWSPhotoContest/ where you can see all the entries.

Here are our winners:

1st place - Soraya Carmona /Spain/

2nd place - Mike Diez /Spain/

3rd place - Siska Van der Donckt /Netherlands/

Congratulations to winners and thanks to all participants.


Photocontest 2016: Music and Williams Syndrome

In January and February 2016 the first Williams Syndrome Photocontest was held. This year´s topic was Williams Syndrome and Music and each country within FEWS collected photographs of non-professional artists. Each country also selected three winners in two categories - category below 14 years and above 14 years. Later FEWS selected the overall winners of the competition and here are the winning photos:

Third place in the category above 14 years - Susan (Denmark)

Third place in the category above 14 years - Susan (Denmark)

Second place in the category above 14 years - Meta Dankfort-Nevel (Belgium)

Second place in the category above 14 years - Meta Dankfort-Nevel (Belgium)

The winner in the category above 14 years - Rosa Aznar Gomez (Spain)

The winner in the category above 14 years - Rosa Aznar Gomez (Spain)

The winner in the category up to 14 years - Alexia Colmorgen (Germany, 12 years old)

The winner in the category up to 14 years - Alexia Colmorgen (Germany, 12 years old)

You can check the complete album on our facebook page
https://www.facebook.com/media/set/?set=a.1033726693357697.1073741829.781333178597051&type=3


International Williams Syndrome Conference in Rome

Next October 17th 2015, the Italian Williams Syndrome association AISW Onlus organises an International Conference 'Harmonize Williams Syndrome in Europe' in the Aula Magna of the Pontificial Lateranese University in Rome. You can find the program, speakers, venue, accomodation and registration information on www.hwsie.aisw.it.


European Conference on Williams Syndrome in Budapest

The European Conference on Williams Syndrome last November exceeded the expectations with almost 100 participants from 17 different countries. The majority of the participants came from the eastern European countries. They included mainly professionals involved with Williams people and were complemented by parents and representatives of Williams syndrome associations. 13 expert international speakers presented different topics going from genetics and medical to educational and social topics. You can find more details here.

 


Williams Syndrome and Eurovision song contest

A finish group Pertti Kurikan Nimipäivät who consists of people with intellectual disabilities including Down and Williams Syndrome won against other eight contestants and will represent Finland for Eurovision song contest taking part in May 2015 in Vienna. Their songs deal for example with daily problems of people with disabilities, discrimination or politics. Besides this competition you can meet this group in film called Punk Syndrome.

http://www.pri.org/stories/2015-03-03/finlands-eurovision-finalists-sing-about-discrimination-against-mentally-disabled