Eurordis (www.eurordis.org) organized in the second half of 2025 a survey on the Mental Health amongst persons suffering from a rare disease. The results are available since a few months. See https://www.eurordis.org/rare-barometer-reveals-mental-health-crisis-in-rare-disease-community/.
You may find here the survey results specifically for persons with the Williams Syndrome.
The French association ‘Autour des Williams’ gives a voice to young adults with Williams-Beuren syndrome in the song and accompanying clip “Même Oxygène”. […]
This year’s Photo Contest has run from March 1st till may 1st 2026. The theme was “I can, I shine!”. This theme […]
The associations Autour des Williams and Fédération Williams France are launching a new international call for research proposals on Williams-Beuren syndrome. Funding […]
Next October 17th 2015, the Italian Williams Syndrome association AISW Onlus organises an International Conference ‘Harmonize Williams Syndrome in Europe’ in the […]
