ASWE considers of a crucial importance to create spaces for learning, knowledge, participation, opinion, collaboration and cooperation among all those who are in favour of the scientific and social investigation of Williams-Beuren Syndrome, such as people with SWB, relatives, and medical-socio-health specialists.
For this reason, this International Meeting is an excellent opportunity to achieve our goals such as promoting the existence of Williams Syndrome Beuren to the population, as well as continue growing and advancing in the field of the syndrome to improve the quality of life of people who suffer it.
The main objectives of the meeting are to provide updated information on existing research on Williams Syndrome Beuren and its results and to report on the existence and benefits of different specific care treatments that can be done by people with Williams Syndrome Beuren. We will also have first-person success experiences in various areas within the collective. The European Federation of Williams Syndrome will also report on their activities.
The lectures on Friday, November 10 will focus on medical research conducted by different international specialists from Canada, France, Italy, Germany and Portugal. Besides we include roundtable discussions of experiences in Europe in collaboration with FEWS. The official language of this day will be English, with simultaneous translation into Spanish.
On Saturday November 11 will be devoted to roundtables discussions on medical and psychological aspects, language, comprehensive care, and personal experiences of success told in first person. The official language will be Spanish, with simultaneous translation into English. (source: http://jiasw.sindromewilliams.org/conferences/?lang=en)
The Italian Williams Syndrome Association has organised the International Conference “Harmonize Williams Syndrome in Europe” in Rome on 17th October 2015 at the Aula Magna of the Pontificia Università Lateranense. The Conference focussed on recent discoveries in molecular biology and on clinical, neuro-psychological, therapeutical and endocrinological aspects of Williams Syndrome. The European Williams Syndrome Associations reported on their activities.
On Sunday 18th October the Williams Family Day “Real Fun Surrounded by Nature” at Parco Avventura Riva dei Tarquini in Tarquinia took place with an open discussion between national experts and families. More info can be found here.
The European Federation of Williams Syndrome (FEWS) has organised in cooperation with the Hungarian Williams Syndrome Association a European Conference on the Williams-Beuren Syndrome to raise the awareness on this rare disease, make the stakeholder groups more interactive and establish international cooperation on expert field. The focus was to share good practices and knowledge on the disease between European Countries with a good expertise and other European Countries with lesser experience on the syndrome.
The Conference targetted professionals in different areas from different countries, who, by their professional position, have an impact on spreading the awareness and knowledge about Williams syndrome:
- Health professionals and caregivers
- Researchers, clinicians and academics
The Conference language was English and ran from Friday evening 21st till Sunday 23rd November, 2014 in Hotel Benczur in Budapest, Hungary.
International speakers with expertise in Williams syndrome presented during the Conference various topics: paediatrics, cardiology, genetics, education, dental care, psychology, psychiatry, linguistics, music therapy, pharma research, sleeping problems. And around 20 Posters were also presented. More details can be found here.
Past International Conferences
In the past several other International conferences on Williams syndrome have been organised by national Williams organisations. You can find the most important ones listed below with their summaries attached.
International Williams Syndrome Conference – 2008
International Williams Syndrome Symposium – 2005
Fonyód, Hungary, June 25, 2005
European Conference on Williams Syndrome – 2004
Rome, Italy, November 19-20, 2004