Dansk forening for Williams syndrom – the Danish Association for Williams Syndrome was established in 1991.

“We have approximately 100 members affected by Williams syndrome and their families as supporting members. The association is nationwide.”


Mette Grentoft

Mette is the President of the Danish association for Williams Syndrome and have the privilege to be the Danish delegate to FEWS. Mette is also a board member of the Danish national Alliance for rare diseases (Rare Diseases Denmark).
“I am a nurse anesthetist of education and my personal experience is raising a girl, born in 1999 affected by Williams syndrome.”