The Williams Syndrome Association of Ireland (WSAI) was set up in 1987 to promote the general welfare of children/adults with Williams Syndrome and to provide practical help and support for them and their families. WSAI has approximately 80 member families.
Each year the association runs a weeklong Music/Activity Camp for WS people during the summer. It also organises other events for its members e.g. a weekend get-together, a picnic, an informational seminar on some aspect of WS. Telephone support and information packs are provided for WS families, particularly those who are newly diagnosed. WSAI relies almost completely on fundraising and donations in order to continue its work for WS people and their families.
 |
Stephen LangtonI am the current Chairman of Williams Syndrome Ireland and have been a member for 29 years. My daughter Rosanna is the person with WS, she is 40m in Oct 2025. My abiding interest in Williams Syndrome is to foster greater social connectivity between our wonderful WS people and to engage so that we can organise these opportunities as often as is possible. Also to pursue to have clinical guidelines that are understandable by parents and carers and guidelines also for our General Practitioners. And promote awareness of Williams Syndrome and organise an annual event such as our Awareness Week. |