Nederlandse Vereniging Williams-Beuren Syndroom (NVWBS)
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Twan de KruijfFather of two sons Ties and Rens. Ties the oldest son was born in 2008 and with Williams Beuren syndrome. He is a member of the parent network NWBS, Nederlandse Vereniging Williams Beuren Syndroom. The association has 150 members WBS. He hopes that by participating of FEWS, he can help to raise awareness about the syndrome in the Netherlands. He personally finds it very interesting to exchange experiences on how associations operate in other countries. |