The Norwegian Williams Syndrome Association (Norsk Forening for Williams Syndrom – NFWS) was established in 1986 and have today approx. 160 members, mostly families but also some supporting members and professionals. The association is nationwide. Since mid-2000, NFWS is chaired by Erik Andersen.
Our vision is:
“People with Williams Syndrome in Norway should have a good life”.
This means that NFWS will work for all people diagnosed with WS – not only members of NFWS.
The Norwegian WS Association is very active and has 180 members. The association works to strengthen and promote the knowledge of WS and ensure families are met and share experiences.
Our focus areas are: Mastering, unity and happiness.
Annually we arrange a convention for all members and a series of camps with varying themes and audiences. Many members are also organized in sub-groups and do a various of activities together.
Tor (Øyvind) Oftedal represent Norway in FEWS. He is married and has 4 children , one daughter with WS, born 1986. Tor is an engineer by education and has worked over 40 years in the oil industry both domestic and international. He has undertaken several leadership/management positions in international oil companies. Presently he is an advisor to the industry.