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The Williams-Beuren Syndrome Association of Switzerland, established in 2000 by parents of children diagnosed with the syndrome, is committed to fostering communication and the exchange of experiences among families. We ardently advocate for the social inclusion of those affected and endeavor to protect their interests and rights. We organize quarterly family meet-ups alongside seminars on a variety of topics, encompassing research, pertinent medical information, and social issues related to the Williams syndrome. Our association represents 94 member families.
Here are the links to the website:
Susanne Klemm Grognuz is the mother of Floriane, a young woman born in 1994 who has Williams syndrome. Susanne is the vice-chair of the Swiss Williams-Beuren Syndrome Association and serves as the Swiss representative for FEWS. Her email address is: susanne.klemmgrognuz@williams-syndrome.ch |